Firstoscartgrouch says hi:

Do you know the difference between a cardiac arrest and a heart attack?

  • Yes

  • No

  • Aren't they the same thing


Results are only viewable after voting.

Firstoscartgrouch

First Oscar T. Grouch, but I answer to Oscar
Hi: Oscar The Grouch had been my nickname for about three decades. I pretty much use it everywhere around the internet in some form or other.

I'm Canadian, I've been digiscrapping about eight years, in various forms. I scrap exclusively on my iPAD using mostly Affinity Photo or Over App. I paper scrapped for ten to fifteen yeas before that.

I have a husband, a daughter, a son, and a bunny and a sudden arrhythmia death syndrome called long qt, that has already killed me and forced a resuscitation. After my diagnosis through genetic testing it was found in my mom, my daughter and a sister.
 

Tbear

Well-Known Member
I have a husband, a daughter, a son, and a bunny and a sudden arrhythmia death syndrome called long qt, that has already killed me and forced a resuscitation. After my diagnosis through genetic testing it was found in my mom, my daughter and a sister.
OMG how scary to have this syndrome! Do you have medication or what can be done for you?
 

lebjs

A Kiwi living in Oz
Hi! Welcome to PDW. I'm looking forward to seeing your layouts in the gallery. I've never tried scrapping on my iPad - I'm off to check out the apps you mentioned :)
 

Firstoscartgrouch

First Oscar T. Grouch, but I answer to Oscar
OMG how scary to have this syndrome! Do you have medication or what can be done for you?
Sometimes it can be very scary, other times it's life as usual. Beta blockers are a main treatment for long qt. because I've already had cardiac arrests I have my own implanted cardioverter defibrillator ICD, that would shock my heart out of an arrhythmia.

My daughter has had a LCSD left cardiac sympathetic denervation, which is cutting a nerve out of the heart and tricking it into thinking it's beta blocked without taking oral betas. And has a ICD implanted. My mom and sister are good so far with just betas.

We have many medications we have to avoid which prolongs the qt, and need to keep electrolytes balanced.
 

Tbear

Well-Known Member
Sometimes it can be very scary, other times it's life as usual. Beta blockers are a main treatment for long qt. because I've already had cardiac arrests I have my own implanted cardioverter defibrillator ICD, that would shock my heart out of an arrhythmia.

My daughter has had a LCSD left cardiac sympathetic denervation, which is cutting a nerve out of the heart and tricking it into thinking it's beta blocked without taking oral betas. And has a ICD implanted. My mom and sister are good so far with just betas.

We have many medications we have to avoid which prolongs the qt, and need to keep electrolytes balanced.
I have since found out that my hubby's uncle died of this same thing in 1952 and so did his son in 1984. Neither of them realized they had it. No diagnosis available in the 50's so no warning for the remaining family members. How tragic.
So glad there is meds and procedures for this now. We are so lucky to have access to modern medicine advancements.
 

Firstoscartgrouch

First Oscar T. Grouch, but I answer to Oscar
I have since found out that my hubby's uncle died of this same thing in 1952 and so did his son in 1984. Neither of them realized they had it. No diagnosis available in the 50's so no warning for the remaining family members. How tragic.
So glad there is meds and procedures for this now. We are so lucky to have access to modern medicine advancements.
I'm sorry to hear that. Did the long qt carry on in the family to other members?
 

LisaAdmin

Rockin Ninja Boss
Staff member
Welcome! AND WOW! It is amazing to think how far medicine/ doctors have come (and I am so glad it has!!)
 
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